I’ve been laser-focused on something the majority of this last year. Meticulously, fervently, taking every free minute, working well into the quiet of the nights, into early morning hours. I pushed to the utmost limits of what I could never imagine, working head down. I’ve poured my heart and soul into this. I hope the aurora of my patient advocacy work will be a lifeline to those in need, especially when they are faced with their most desperate, darkest, most difficult moments in navigating their diagnosis.
I've listened to patients’ frustrations and witnessed the barriers they face in accessing their data. I've heard patients’ demands for transparency and watched them be completely ignored. I know first-hand the grief, loss, anxiety, and distrust that stems from data blocking.
I've personally wiped away those tears from those who are suffering. I’ve cried my share of many tears on their behalf as well.
Tears, complaints, and sleepless nights won’t change a thing. Policies and regulatory updates won’t work unless there is an actionable way to hold violators accountable.
I have vowed to not stand back silently, powerlessly, and helplessly any longer. Today is the day we arm patients, their carepartners, and advocates with strategies to fight back against data blocking from the bottom up. I'm proud to present to you today Unblock Health: https://www.unblock.health